CL
Loved, not just Cared for
The building was formerly a center for hyperbaric treatment [experimental therapy
using pressurized chambers to treat diseases]. Today, it offers advanced medical
services, home-care, transport services, a hydrotherapy center, and soon a workshop.
A Rehabilitation Center managed by Anffas, an association of families with members
suffering from intellective and relational difficulties
by Piergiorgio Greco
“Now my wife and I have an overflowing will to live.” Antonio is
a businessman in his fifties, married for over 25 years. His two children fill
his life. They both suffer 100% disability. He recalls, “I don’t
know how many times I hammered the steering wheel with my fists, after the specialists
had assured me that the second child would be normal, but instead….” He
pauses, lifts up his eyes, and repeats with conviction, “Today my wife
and I are living a fullness of life that is contagious!” We are sitting
beneath a willow tree that shelters us from the bland October sun, in this garden
that adorns the Sant’Atto Rehabilitation Center, on the outskirts of Teramo,
a stone’s throw from Gran Sasso, the mountain which looms majestically
over this part of Abruzzo, keeping an almost fatherly watch. Antonio’s
two daughters, Fiorenza and Daniela, are staying here, where they are treated,
cared for, and loved. They smile as their father caresses them tenderly. “I
owe my fullness of life to the encounter with the friends of Communion and Liberation,
to this rehabilitation center, and to these people here,” he explains with
emotion.
An association of families
With us in the shade of the willow are Ercole, Pierluigi, Massimo, and Mauro.
They tell me, “Enzo couldn’t come because he has just had an operation,
but he is one of us.” “Us” or “these people” are
a group of friends who make up the Board of Directors of Anffas Teramo, a non-profit
organization, the association of families that manages the semi-residential structure
for the disabled in the former Sant’Atto center for hyperbaric treatment,
which provides the most up-to-date rehabilitation services.
It’s a real gem, born two years ago out of the passion and tenacity of
this group of friends, three of whom have disabled children. “When you
find yourself facing the drama of disability,” Antonio says, “you
realize that you are frighteningly alone. So you set out to find someone who
wants to, and can, share this pain with you.” This often-disheartening
search found an unexpected answer. So it was that Antonio met Ercole, who met
Massimo, who met Enzo, who met Pierluigi, who met Mauro. A friendship was born
that has lasted ten years. Some belong to CL; all of them are Christians or have
returned to Christianity. In 1991, this “getting together” adopted
the name Anffas Teramo, an association of families with members suffering from
intellective and relational disabilities. In 1997, the group was evicted from
its headquarters in central Teramo. “That was when we thought of taking
over the former hyperbaric treatment center, a complex that some years before
had housed a center for hyperbaric medicine, a precious national resource that
was forced to close in 1992.”
Exponential growth
The wheel came full-circle in 1999. The local health authority offered the use
of the building, the Cassa di Risparmio di Teramo Foundation (a cooperative savings
bank) financed the project, and Anffas said it was ready to manage the structure.
From April 1, 2001, the day of the inauguration, until now, the Sant’Atto
Institute has grown exponentially, and now provides 30,000 rehabilitation services
every year. The structure, which has an excellent center for hydrotherapy and
a valuable transport service, provides jobs for sixty-two people, including therapists,
doctors, nurses, and administrative personnel, compared with only four when the
project started. One sore point, albeit a sign of quality and of the widespread
need, is the enormous waiting list. In short, in just two years, a real model
of reference for the whole region has developed, destined to grow even more in
the forthcoming months.
The inauguration
of La Piazzetta
So far we have spoken of health services, but Sant’Atto doesn’t stop
there. In a few week’s time, a workshop, called “La Piazzetta,” will
be inaugurated, a structure 500 yards away from the former hyperbaric center
that will house a center for disabled youngsters with some rooms dedicated to
productive activities. The workshop is situated in a former school building offered
by the Bishop of Teramo, Vincenzo D’Addario, at the request of the local
pastor, Fr Domenico Maraschi, and is the natural completion of the rehabilitation
work carried out at the center. Antonio explains, “In these rooms, the
disabled people who no longer need therapy can spend the afternoon in games,
recreation, informatics, and theatrical activities; but above all they can learn
job skills.” December will see the start of two courses of formation lasting
800 hours, for thirty disabled people. Massimo tells us, “Fifteen of them
will learn to work with fabrics, and the other fifteen will learn to make beauty
cases, overnight bags, and other leather goods. We are thinking of putting them
on sale at the end of next year.”
Convention for Horse Therapy
Once again: A “chance” meeting with the head of the Teramo Faculty
of Veterinary Medicine led to a tripartite convention involving the local heath
authority, the university, and Anffas, for the realization of a center for hippotherapy
[horse therapy], a mile away from the hyperbaric center. Finally, thanks to fifteen
volunteers fulfilling their compulsory one-year national service requirement
(through civil duty, in this case), the center is able to offer home-care services.
So there is an attention for the disabled that goes far beyond the rehabilitation
phase, taking in social and formative stages. Ercole tells us, “As far
as we are concerned, it’s not a question of a disabled person suffering
from one pathology or another, just as it’s not a question of a disabled
person living in the town or coming from far away. Though the costs are high,
we go every day to fetch a boy who lives a few miles away from the town. And
there is no difference between a disabled person fifteen years old or forty years
old. This center is a story that involves people of all ages without discrimination.
Before being someone with a handicap, a disabled person is a “whole” person
who wants to be happy, wants to feel loved, not just taken care of. Sure, we
know we cannot give an adequate answer to the expectations in the heart of these
youngsters and their families, since it seems that many of these sufferings will
end only with death. We ourselves feel that we are loved so much by the Mystery
that we feel the need to go on with this enterprise.” The weekly meeting
of the Board of Directors, during which questions are discussed and decisions
made together, is the “guarantee” that Sant’Atto does not end
up a utopian project. “Our unity produces realistic judgments and intelligent
actions. Each one of us is indispensable in this history.”
Five loaves and two fish
A love for the person thus understood, an attention for this “unity” of
the person, is a body-blow for some ways of understanding health and sickness
today. This love can be born only from people who feel themselves loved, people
who, in their turn, feel “united.” This is the secret of Sant’Atto.
Ercole takes up the story again: “We are all aware that in all this we
have put five loaves and two fish, nothing more. The multiplication was the work
of Him who is present in our friendship.” In other words, a miracle that
has moved everyone. And they are all aware that they cannot do without this friendship,
this locus, the place where they feel they belong, in an age in which self-sufficiency
is the highest ideal of life. This can be seen in the enthusiasm with which they
tell their story, in the paternity they show for the patients in the center,
and from the tact they use when, for example, they close a door or move an ashtray.
It is a presence that spreads. A group of people made up of staff and patients
meet every week for the School of Community; Giovanna Censoni, the medical director,
and Paolo D’Angelo, the administrative director, are there, too.
What ties everything together
It is this belonging that produces the “unity,” as Antonio explains. “There
is no separation between my work and this enterprise, because it’s not
just my two daughters we have here; I am here, too, with my desire, and with
these friends of mine who remind me that Christ is the Presence for whom it is
worth working, laughing, rejoicing–or suffering, for my two daughters.
Christ is what ties everything together: work, daughters, friends, these disabled
people. Now,” he repeats, “my wife and I have a will to live that
is overflowing!” “I have no children,” Mauro adds, “but
after my years of national service with Anffas I realized that I could no longer
do without these friends, without this history and this task. Although I could
have gone on living my life peacefully, just doing my job in the bank, I decided
to go on working on the Anffas Board of Directors, carrying on this history which
has become the history of my life.”
A woman of remarkable class
While Ercole, Antonio, Massimo, Pierluigi and Mauro were introducing the personnel
to me and proudly showing me around the rehabilitation center, I met Angela,
a woman of remarkable class. Multiple sclerosis is slowly consuming her smile,
but all the same she didn’t miss the chance to tell me what Sant’Atto
means for her. “My coming here was a dream come true. The social workers
who came to me at home treated me like a piece of furniture to be dusted. Here
it is quite different, thanks to these ‘devils’”, she said,
glancing at the other patients and the therapists. “I discovered the eternal
value of every instant that God gives me, even in this wheelchair.” It
came to me spontaneously to ask her, “You are living the experience of
pain; are you afraid of the future?” “The future for me,” she
replied, “is the present I am living. The joy of the present that I am
living.” She turns towards Ercole and whispers, “Thanks to you I
rediscovered this joy of living.” A little further over is Arturo, a boy
with Down’s Syndrome who until two years ago didn’t open his mouth. “Show
Piergiorgio what you can do,” Ercole tells him with a smile. He doesn’t
waste time, and after a moment’s concentration sings in a true tenor voice, “Volare
oh oh…”